33^rd Annual Miracle Tournament and Celebration Dinner

Treated at University of Michigan Health at Sparrow Children's Center in Lansing, MI.

At 17 weeks pregnant, Ryan’s mom, Becky, was diagnosed with a subchorionic hematoma. Soon after, Becky was placed on bedrest for 6 weeks until Ryan was born via an emergency C-section at 23 weeks.

Ryan weighed one pound seven ounces at birth. In the University of Michigan Health at Sparrow Children’s Center’s Regional Neonatal Intensive Care Unit (RNICU), he was supported by a team of neonatologists, nurse practitioners, nurses, respiratory therapists, phlebotomists, and many others. Ryan’s time in the NICU was marked by underdeveloped lungs and bronchopulmonary dysplasia, multiple infections, intraventricular hemorrhages, necrotizing enterocolitis, and advanced retinopathy of prematurity.

After discharge, Ryan required regular follow-up appointments with many subspecialists, therapists, medical equipment providers, and others. He was readmitted that first year into the pediatric intensive care unit for breathing difficulties, and additional surgery.

Today, Ryan is a 14-year-old who exemplifies perseverance. He loves to build things, ride his bike and hoverboard, and play in the band!

Thanks to donations to Children’s Miracle Network Hospitals, Ryan had access to a team of lifesaving specialists in the neonatal intensive care unit after being 17 weeks prematurely.

Treated at Nicklaus Children's Hospital in Miami, FL.

After a seemingly healthy pregnancy, Jaxon’s parents were told not to worry by medical providers by a few early signals that something seemed off. Thankfully, his uncle noticed the ridge along Jaxon’s forehead and did not believe the triangular shape of Jaxon’s head was caused by the trauma of delivery. At two weeks old, a CAT scan confirmed Jaxon’s metopic craniosynostosis, where the soft spot at the top of his head had been prematurely fused together in the womb. Jaxon’s parents took him to the renowned Nicklaus Children’s Hospital Brain Institute. At seven months old, Jaxon underwent an eight-hour cranial procedure at Nicklaus Children’s. Despite the challenges, he was in good hands, even combatting other anomalies such as the misalignment of the eyes, a hole in his heart, a horseshoe-shaped kidney, and more. Given the range of birth defects their son faced, Jaxon’s parents’ genetics testing at Nicklaus Children’s confirmed that he had a rare gene mutation in CDK13. There wasn’t much known about CDK13 at the time. Today, nearly 300 cases have been identified globally. For now, Jaxon’s parents treat each symptom as it arises. He struggles with tasks requiring the use of his hands and motor skills, and his ADHD and moderate autism made everyday life and academic tasks challenging. And yet, he continues to make remarkable progress in physical therapy, occupational therapy, and speech therapy. Jaxon’s resilience and carefree, fun personality positively inspires all the lives he touches.

Donations to Children’s Miracle Network Hospitals support the clinical institutes and personalized care that allow Jaxon to make remarkable progress on his journey.

Treated at Children's Hospital of The King's Daughters in Norfolk, VA.

At 11 years old, Sam’s parents noticed that something wasn’t quite right. The energetic, competitive tennis player said he felt tired all the time and was often cold, his appetite disappeared and he lost some weight. His pediatrician ordered bloodwork and a few hours later, called the family and asked them to bring Sam immediately to the emergency department at Children's Hospital of The King's Daughters (CHKD). Sam was diagnosed with T-cell leukemia and had a mass in his lungs, close to his heart. Sam was admitted to CHKD and immediately started treatment. A week later, his mass was barely visible. Although he was discharged, Sam returned to CHKD several more times over the next year for additional treatment. During his nine hospital stays, Sam realized how fortunate he was to have his mom and dad with him every step of the way. He decided that when his cancer treatment was over, he wanted to help other families by fundraising for CHKD. Two years after his initial trip to the emergency department, Sam was in remission and had raised more than $100,000 to help families with a child in the hospital. Today, Sam is back in school and focused on getting stronger. His family says they are incredibly thankful for Sam’s recovery, the staff at CHKD, and everyone who has donated to help CHKD patients and families.

Thanks to donations to Children’s Miracle Network Hospitals, Sam received quick, lifesaving treatment for his T-cell leukemia and is a strong, healthy 15-year-old.