33^rd Annual Miracle Tournament and Celebration Dinner

Treated at West Virginia University Children’s in Morgantown, WV.

Addison was eight years old when she had a rapid onset of seizures, which were misdiagnosed as panic attacks. Doctors encouraged her family to take their already scheduled vacation, but after arriving in South Carolina, her episodes increased in intensity and frequency. When her mom took her to the nearest emergency department, she was told it would be a thirteen-hour wait. Addison’s eyes were dilated and her hands and legs were shaking; her mother wondered if her daughter was having seizures and pleaded for a doctor to admit her daughter. After countless tests and doctors’ visits, neurologists diagnosed her with cortical dysplasia to the frontal lobe, which is a congenital abnormality of brain development that can cause irretractable epilepsy. Addison underwent a craniotomy with right frontal lobe resection and a few weeks later, she needed a spinal tap to drain the excess fluid from her brain due to a cerebrospinal fluid leak. Today, although on medication and still having seizures, Addison exudes strength and wisdom far beyond her years. When she grows up, Addison wants to become a Child Life specialist.

Donations to Children’s Miracle Network Hospitals provides life-saving care and essential programs that support Addison and her family during her treatments.

Treated at Children's Health in Dallas, TX.

When Jenifer was 20 weeks pregnant, she learned that her baby's, heart was on the right, instead of the left side of his body. This meant he would need surgery shortly after birth to help his blood flow properly. Kaleb's parents chose Children’s Health because not only would they have an expert surgeon, but an entire care team dedicated to their baby’s health. Kaleb was born six weeks early with a heart defect that impacted the way blood flowed through his lungs, meaning his pulmonary veins, which carry blood from the lungs to the heart, weren't working well. Kaleb’s doctors made the difficult decision to try a surgery that had only been performed once, unsuccessfully. Kaleb underwent surgery at 9 days old – placing two stints to keep oxygenated blood flowing throughout his body – and it worked so well that the procedure has become the standard of care for all babies born with this heart defect. He also lives with heterotaxy syndrome, a rare genetic disorder that can affect the development of important systems like the heart and gastrointestinal tract. Living with heterotaxy is difficult, unpredictable and requires long-term monitoring and care. But Kaleb’s care team and family do everything they can to keep him as healthy as possible, so he can focus on regular kid things — like swimming, Legos, Minecraft and learning everything he can about U.S. presidents. Every Halloween, Kaleb dresses up as a different U.S. president. He also loves animals, especially his Goldendoodle. “Her name is Jefferson, after President Thomas Jefferson. And yep, she’s a girl,” Kaleb said.

Thanks to donations to Children’s Miracle Network Hospitals, Kaleb had access to an innovative, life-saving heart surgeon and care team.

Treated at Children's Hospital Los Angeles in Los Angeles, CA.

Melody was born with a rare congenital condition where string-like bands of tissue wrap around fingers and toes. Amniotic band syndrome is non-preventable and affects one in 15,000 births annually. Melody faced her condition with grace and her family was referred to Children’s Hospital Los Angeles, where she has received comprehensive support. To date, Melody has had four surgical procedures to separate her fingers and remove excess skin to improve her hands’ functionality. Today, Melody proudly tells people about her unique hands. She loves doing art and celebrates her uniqueness.

Thanks to support from Children’s Miracle Network Hospitals, Melody has received access to donor-funded programs, providing a lifeline of support for the areas of greatest need in children’s health care.