33^rd Annual Miracle Tournament and Celebration Dinner

Treated at Orlando Health Arnold Palmer Hospital for Children in Orlando, FL.

During their 20-week ultrasound, Akosua and Fernando learned that their baby had spina bifida. Determined to explore all options, they reached out to the Fetal Care Center at Orlando Health Winnie Palmer Hospital for Women and Babies after learning the hospital offered in-utero surgery for babies with this diagnosis. Within a week, Akosua started an evaluation to see if she and her baby were suitable for in-utero surgery, and thankfully, they were. At 25 weeks into her pregnancy, Akosua underwent surgery to correct the defect in Celeste’s spine. Seven weeks later, Celeste was born, weighing 4 pounds, 10 ounces. After a short stay in the neonatal intensive care unit to ensure her health, she was able to go home. Now, at five years old, Celeste is thriving. She walks on her own and enjoys gymnastics, swimming and playing with her sister. Celeste is smart, playful, determined and kind. Celeste goes to weekly physical therapy, and as she grows, she will continue to receive care at the Spina Bifida Clinic at Orlando Health Arnold Palmer Hospital for Children.

Donations to Children’s Miracle Network Hospitals helped fund the fetal surgery program and the state-of-the-art ultrasound machine used to detect spina bifida in kids like Celeste.

Treated at West Virginia University Children’s in Morgantown, WV.

Addison was eight years old when she had a rapid onset of seizures, which were misdiagnosed as panic attacks. Doctors encouraged her family to take their already scheduled vacation, but after arriving in South Carolina, her episodes increased in intensity and frequency. When her mom took her to the nearest emergency department, she was told it would be a thirteen-hour wait. Addison’s eyes were dilated and her hands and legs were shaking; her mother wondered if her daughter was having seizures and pleaded for a doctor to admit her daughter. After countless tests and doctors’ visits, neurologists diagnosed her with cortical dysplasia to the frontal lobe, which is a congenital abnormality of brain development that can cause irretractable epilepsy. Addison underwent a craniotomy with right frontal lobe resection and a few weeks later, she needed a spinal tap to drain the excess fluid from her brain due to a cerebrospinal fluid leak. Today, although on medication and still having seizures, Addison exudes strength and wisdom far beyond her years. When she grows up, Addison wants to become a Child Life specialist.

Donations to Children’s Miracle Network Hospitals provides life-saving care and essential programs that support Addison and her family during her treatments.

Treated at John R. Oishei Children's Hospital in Buffalo, NY.

Born in India, Vignesh was adopted by his family at five years old. Vignesh was diagnosed with spina bifida, as well as hydrocephalus, a condition in which the body is not able to rid of excess fluid in the brain. He also experienced hearing loss and needed a cochlear implant surgery while in India. At Oishei Children’s Hospital, Vignesh underwent four surgeries, one of which was to replace his current shunt with a new one. At the age of nine, Vignesh received a new cochlear implant and is doing amazing. His family is grateful for the tremendous support and care at Oishei Children’s Hospital.

Donations to Children’s Miracle Network Hospitals help patients like Vignesh receive exceptional care and specialized occupational therapy.